If you have never heard 'Jump Rope' by Blue October, or if you have forgotten about it, I recommend that you find it and listen to it. The analogy is fitting for everyone - life can cause your spirits to soar, and it can also make you feel very sad and discouraged. So very true, and so very simple. I love it!You gotta hold your head up high and
Watch all the negative go by
Don't ever be ashamed to cry
You go ahead
Cause life's like a jump ropeI want to tell you that everything will be okay
That everything will eventually turn itself to gold
So keep pushing through it all
Don't follow, lead the way
Don't lose yourself or your hope
Cause life's like a jump ropeUp down
Up down
Up down
Up down yeah
It will get hard
Remember life's like a jump rope~ Excerpts from
In the meantime, before the weather became sporadically wintery, we took Ethan and Liam on a trip to the zoo, thanks to Laurie Holloway!! (Laurie reached out to us shortly after the twins were separated. She is so incredibly kind and generous!) Laurie tipped us off to be sure to visit the monkeys as there had been a new addition to the monkey family.
And now for news on the babies.
Emmett has been recovering from his j-tube placement surgery like a champ. They began trial feedings via his new tube, but had to stop them 1.5 days later to get him prepped for another trip to the OR. His surgery today was to address the IV infiltrate that occurred prior to his j-tube placement surgery. The doctor took him down for a debridment procedure, which basically means that all the dead skin needed to be removed to allow granulation (development of healthy blood supply) of the exposed area. The doctor placed a wound vac over the area to promote healing, and a skin graft procedure has been tentatively set for Thursday (2/20/14). He was looking good after his surgery and just beginning to stir when I left today.
Now, as for Owen, he had surgery this past Tuesday for a few different issues. The plan was 1.) J-tube placement 2.) double fistula repair (both at the skin level and intestinal level). But, as with all things with these boys, it wasn't as easy as that. Our surgeon decided to remove the reconstructed portion of the small bowel because it wasn't getting good blood supply, and it was causing more problems than what was desired. They also placed a g-tube in his stomach to act as a drain (rather than placing a replogle in his nose/mouth or vomiting), and the gallbladder drain that has been in place since separation surgery on August 24th was relocated to make room for the j-tube and g-tube. The longterm hope is to eventually remove the j-tube (which bypasses the stomach and delivers nutrition into the upper intestine), leaving only the g-tube into the stomach for feeds. Needless to say, his pain is being managed and he is as comfortable as he can be, given the situation.
All in all, things are progressing. And we are blessed.
3 good things:
1.) brainstorming sessions with Dave. New ideas are where dreams begin.
2.) being able to be "just a mom."
3.) strong, resilient boys - all 4 of them.