Tonight I find myself doing something I haven’t done since December 2009: updating this blog from Juliana’s hospital room. You see, not all corners turned are in the direction you would like to go. S...
The day began with that eerie drive to Christ Hospital at 5am. This time though, Juliana was in the car with me and the outcome was more predictable. Today was the baclofen pump insertion surgery. Si...
Warning: Darkness Alert...For those of you who have been along for the whole bumpy ride through my positive attitude as well as my moments of desperation, you won’t be at all surprised or alarmed to ...
Juli snapped back nicely from her nausea and was a trooper at the Thunderbolts game. She even went on the field with Chris’s mom Gloria to throw out the first pitch. The night was success and we were...
Yesterday Juliana completed the baclofen pump trial and the whole experience gave me a new understanding of ‘winning ugly’. The trial itself consists of performing a spinal tap or lumbar puncture to ...
I find it interesting how people choose to view the chain of events that became public with Chris’ American Idol audition. There are a vast majority of people who only became aware of Juliana’s story...
The date is set for Juliana’s baclofen pump trial: this Friday July 29th. I hated to do it while Chris is out of town but that is getting harder and harder to avoid as we realize that so much of what...
Upward swing again…it’s only on its fourth day but ‘good mood Juli’ is nearly as rewarding as ‘pre-accident Juli’. We did adjust some of her meds to remove the sleep med of nearly 2 years and replace...
Did you ever have a day that had so much of a recurring theme you thought you were living in your own 30 minute sitcom? For some reason the last few days have been like that. I was involved with a si...
The Botox is just starting to loosen up Juli’s hand a little and the hand brace is back in action. It is quite a sad sight to see though as her stiffened hand creakily opens up to cover the nearly fl...
What an incredible experience we have just had. We spent the last two days at the Braun Ability booth at the Abilities Expo in Schaumburg. For those of you who don’t know, it is a compilation of vend...
Today was Botox day and the doctor was able to put most of her allowable dose in her arm and the rest of it in her right leg (remember her left one is casted. I have a good feeling about it this time...
Happy Independence Day everyone…assuming I finish this before the clock strikes midnight! Also a happy birthday to my wonderful son Adam who turned 24 today. I am getting very close to having no teen...
Numbers… 10,191,144 …Views of Chris’ video of ‘What are Words on You Tube http://www.youtube.com/watch?v =nQY4dIxY1H4 29,407…Followers on the original Facebook page For Juliana 9845…Views of Juliana a...
Rewind…October 17, 2009….after returning to Christ hospital from the benefit held to raise funds and spirits for Juliana’s recovery, we were faced with some sobering decisions. That day was supposed ...
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So far, so good...the cast on her left foot seems to be working out just fine. In fact, other than her outburst during the application, it has caused her no pain and she doesn’t seem to mind it at al...
Juliana tolerated the casting for just about half of it. Right when they needed her to be calm, stay still and let them position her foot into place, she kinda-sorta lost her bag of marbles. They won...
We had a very good weekend starting with the Laurus Foundation golf outing on Friday where we got a chance to attend to speak in the evening. As I talked to some folks and signed books Juliana tugged...
Surgery to revise Juliana’s trach scar went well yesterday. At least it appears so. The new scar is a straight-ish line down that will hopefully heal into a nearly invisible line. The post surgical b...
Fair warning…anytime you read these updates you need to remember two things: 1. Recovery from a brain injury is a roller coaster and 2. You are reading an emotional mother’s perspective. So you will ...
So far, so good for both Juli and Chris. It sounds like the Norway trip is going very well so far as Chris and The Able Body get plenty of attention from the locals and interviews from the media. Kee...
I am pleased to announce that we have a new member to ‘Team Juli’. We have been waiting for that person with just the right combination of determination and humor, perseverance and dedication; someon...
Can you handle two positive updates on Juliana in a row? I hope so because we have had a really good weekend. Tomorrow I expect will be another good night as we go listen to Chris sing the National A...
I randomly noticed something with Juli yesterday that had escaped my attention up until now: she rarely signs when she talks anymore. And when she does, it is usually just the first letter. You see w...
Lifelong dream realized but would give it all up if I could go back to October 1, 2009 and change the course of fate. But since I cant, heres where it all began... https://www.createspace.com/35 68560
Juli had a pretty good day yesterday. Since she doesn’t have PT OT or Speech on Fridays (its good to be able to take attendance on ALL the disciplines again) Nikki and Juli planned a fun girls day ou...
Remember I told you I had some old videos? I posted this on Twitter a little while ago but wanted to have it here so you can see it. I will also find a way (hint hint John) to get it on the video sec...
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