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a happy girl
020110.blogspot.com
33
I never dreamed I would become a momma. Only a few others with my illness have brought miracle babies into this world. Now that she is here, I am celebrating the impossible, every single day. Seeing the joy in each precious moment. Living with more fervor, loving with each tiny capillary in my body.
#39760 in All , #2018 in Personal

we write to taste life twice

this need i have to write, to document, to record...well, it is big. often bigger than me. ive felt unsettled lately that the lack of writing here doesnt reflect the enormity of what has been ha...

3 h ago

clouds make me think of care bears

Clouds really do remind me of care bears! I told this to Roar a few minutes ago. He thinks (well, okay, knows) Im wacky. We are on our flight, headed back home from our trip to Maryland.The enormity ...

3 days ago

always breathing, always loving

yesterday morning the sweet sounds of john mayers new album born and raised was streaming through the air, and sookie was happily splashing in the bath as i helped her count her various ducks an...

17 may 12

science and progress do not speak as loud as my heart

i love the endless learning opportunities life presents. i love that i think i know a lot, when really, i have so much to learn still.i love that i get excited over silly things, like entering in cok...

30 apr 12

when life gives you lemons

...in the form of bringing your own mortality bubbling to your every surface and crashing down the walls of reality:you cook dinneryou dance in the rainyou draw a happy yellow sunwith sidewalk chalky...

18 apr 12

hope, heartache, happiness

hope, heartache, & happiness are doing a funny dance in my life right now. they coexist in a strange way.it has been an intense 24 (or so) hours.my brain is on overdrive.yesterday afternoon at ta...

12 apr 12

ruffles

lets face it. there are many known truths in the world and ruffles make everything better is one of them! they put a spring in your step, sass in your dance and love in your day!i cant wait to share ...

10 apr 12

Crazy cystagon rambling

Tonight I let a school girl-esque giggle escape my lips as I licked a baby pink confection of sugarific proportions off my fingertips. (Okay, so it was strawberries and powdered sugar, but still!) An...

08 apr 12

on my heart

i am reminded daily of the importance of attitude. that, no matter what diagnosis you have been given in life, the power of your demeanor and the force behind your way of coping is worth so much.so m...

04 apr 12

roller skating with rickets

rickets is a term used to describe soft bones that can be formed incorrectly due to a deficiency of vitamin d.(that is my simple understanding! ;)many children with cystinosis often exhibit rickets f...

01 apr 12

winner and some wonderful gals!

happy weekend!the winner of the large ad sponsor space on crowley party is... ginny at chasing sunshine! congrats ginny! please email me at tahnie(at)gmail.com(if you havent checked out gin...

31 mar 12

live life in color

im missing my sister fiercely, this is something that never changes. spring brings it all rushing to the surface, to the point it seeps out of each pore. the anniversaries are what propels it; her pa...

29 mar 12

Crowley Party Giveaway!

This weekend is going to be amazing! I know this because it is kicking off with something as spectacular as this incredible giveaway! Im super excited to have Alycia from Crowley Party doin...

23 mar 12

Im With You Kid

today is a good day! im really ecstatic to be a part of the gathered thoughts link up over at lovefeast table! the idea is based on the 365 gathered thought box that is a collections o...

19 mar 12

Lets Play Hide And Go...

I love this child. Im so happy shes mine.I hope you are having a wonderful weekend! Soak up what is left of it!xo.tahnie

19 mar 12

im a warrior

hi!im here. im alive! :)it feels strange to go that long between updates. i started this blog for sookie, but i want to document this life for selfish reasons as well. im the first to admit that im a...

09 mar 12 1 person likes this

one thousand gifts

the whir of the ceiling fan and a simple white bow in her hair. two things, so ordinary, yet filled to the brim with extraordinary on a sunday afternoon when i am paying rapt attention.martina mcbrid...

28 feb 12

pass it forward

you know how ellen degeneres ends every one of her shows with the simple, albeit powerful: "be kind to one another."it hits me with the power of gale force winds each and every time. and...

24 feb 12

{guest post: why you should share your story}

Oh, I wish you could all sit and chat with my featured sponsor this month. Even if for a mere 10 minutes. She would change your life. Truly. I am miles beyond lucky (I dont think the word exists...

23 feb 12

our love is

I say... Love is: throwing all caution to the wind & going on a date after an awful breakup. Love is: Starbucks, mountains in the distance & the thrilling goosebumps of meeting someone who wi...

21 feb 12

grand total and the BIG winner!

Happy Sunday evening! Im beyond thrilled to say that our grand total for the fundraiser for Cystinosis Research Network in honor of Sookie turning two is... $1,920!!!I thank each and every one o...

20 feb 12

there is magic everywhere

Glitter in the dryer lint always makes me smile. It is my modern telegraph from the angels, a gentle nudge as if to whisper, "Hey, remember when the life you are living now was only a mere fantas...

13 feb 12

Quiet day.

My body feels a bit like a mess today; my throat feels like it has needles in it, my lymph nodes are swollen, my hip burns, and my arms are doing what theyve been doing for the past 8 months now with...

13 feb 12

fun with food

Im excited it is Friday! I had a little too much fun with Sookies plate of food today. I always do my best to make meals and snacks whimsical by injecting a touch of creativity into them. So today? T...

11 feb 12

a $589 giveaway!

i cannot find the words right now. these generous angels are all banding together to make a big impact.we will be taking entries until Tuesday February 14th, and a winner will be announced on Wednesd...

07 feb 12

little daybreaker

the day is new and so am i. it is even better than a new year, it is a fresh bright new twenty four hours. endless possibilities, boundless hope. the novelty of this notion will never lose its power ...

06 feb 12

beauty

"I want to see beauty. In the ugly, in the sink, in the suffering, in the daily, in all the days before I die, the moments before I sleep. Isnt beauty what we yearn to burn with before we die?...

05 feb 12

happy tears

oh, the happy tears.they came quick and often yesterday. each one it felt, was outlined with a memory of that day two years ago. the peace. the bags we packed. the unknown. the heightened awareness o...

02 feb 12

Birthday Girl

Sookie.You are two today.You are grace.You are beauty.You are light.You are bravery.You are wishes.You are rainbows.You are sunshine.You are happiness.You are laughter.You are hope.You are strength.Y...

02 feb 12

two years ago.

this photo is from two years ago. i saw this car on the freeway one day when i was on bedrest and we were on our way to the hospital for my twice weekly non-stress tests. it was such a huge sign from...

01 feb 12

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