This month and a half has been a bit tough. The after effects of the RSV have included pneumonia, lung infection and concerns of rejection and my PTLD returning. Physically and emotionally, this mont...
I was excited to see the latest issue of Ladies Home Journal feature this story in their March issue.The Choice: To Have Life-Changing Surgery, or Deliver My Baby I had the privilege of meeting both ...
RSV: Respitory Syncytial VirusIf you are wondering, like me about the S, in rSv. Syncytial means: multinucleate mass of cytoplasm that is not seperated into cells. RSV is a common virus with cold lik...
Ladybugs hearing loss has been a progressive loss. She passed the newborn screening test. It wasnt until a year in a half later, when she was re-tested, that the doctors became concerned. It appeared...
Our daughter turned FOUR on January 8, 2012.Its hard to believe.I teared up yesterday as we were looking through pictures of her birth and after seeing this one, Ladybug pointed to Nathans hand and s...
Before my speech at Dukes CF Education Day this past weekend, I asked some of of my facebook friends who I know have a huge impact on the CF community about their advise, their influences, and their ...
"The Mauli Ola Foundation exists to introduce surfing as a natural treatment to people with genetic disorders. Since 2007 we have concentrated on the amazing connection between Surfing and Cystic...
Tomorrow, we pack. Ladybug to the grandparents, Lightning bug (our foster daughter) to our friends R and LC, Pugbug will be packing to visit Uncle Frank, and Lovebug and I will be packing for a few d...
Cheers to seven years!June 27, 2004 -- our day of holy matrimony.June 27, 2011--we spent the day traveling in the car 8 hours to Duke and back. I am still madly in love with my husband of 7 years.
I am really excited about this class for adults being offered this summer in the Outer Banks. After doing some research and not finding any classes being offered for adults on sign language, I happen...
Lately, I have been thinking, pondering, and praying for those dealing with painful situations. I have especially been touched by my friends and loved ones dealing with cancer. Of all my life experie...
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