Taking on Narcolepsy as a New Mom: Guest Post by Cherae Robinson

REM Runner’s Intro: Meet Cherae – a teen mother, college graduate, medical assistant, 20 year old woman with narcolepsy. Young people with narcolepsy may worry about having children, wondering if...

Narcolepsy Featured in The Pink Sheet Publication

I’m excited to share, ”Narcolepsy Patients Hope FDA Attention Will Spur Drug Research, Shed Misperceptions” by Brenda Sandburg, The Pink Sheet, May 13, 2013. [View/Download PDF] This great article...

Debunking the Narcolepsy Myth: Narcolepsy Awareness Video #16

My latest video, “Debunking the Narcolepsy Myth” challenges perceptions of people with narcolepsy falling asleep in the middle of a conversation or while standing and educates about real symptoms....

Free E-Book Giveaway this Mother’s Day Weekend

Download the award-winning Wide Awake and Dreaming: A Memoir of Narcolepsy e-Book for FREE on May 11-12, 2013. My book recently won first place in the San Francisco Book Festival...

Narcolepsy Awareness Video #15: Narcolepsy Chosen for FDA Initiative

I’m thrilled to release my 15th narcolepsy awareness video providing an update on narcolepsy’s placement in FDA’s Patient Focused Drug Development Initiative (PDFFI). Watch this video on YouTube....

Wide Awake and Dreaming Awarded Winner of San Francisco Book Festival Biography/Autobio graphy Competition

Wide Awake and Dreaming: A Memoir of Narcolepsy won first prize in the 2013 San Francisco Book Festival Biography/Autobiography competition. My heart raced with joy receiving the news today!...

Let Her Sleep…

A welcome reminder To let go, Let sleep wash in, Knowing I will rise again, and take on the world. All in good time. I discovered this image on Pinterest and had to share! Link to print on Etsy....

Julie Flygare Featured on Dr. Don Show

On Friday afternoon, I had the pleasure of being on the Dr. Don Show to talk about Wide Awake and Dreaming: A Memoir of Narcolepsy. Listen online here. Friday’s show aired live on two Arizona radio...

Yoga Is My Body Smiling: Returning to My Mat

Returning to yoga yesterday was like a homecoming celebration. Last fall, I stopped practicing yoga due to a back injury. My doctor had recommended I take time off from exercising and...

Tips for Students with Narcolepsy Video

I’m thrilled to release my 14th narcolepsy awareness video! This video offers tips for students with narcolepsy based on my personal experience and various community members’ input. Everyone is...

Book Club Features Wide Awake and Dreaming

This April, the Non-Fiction Book Club of Great Falls and Herndon, VA featured Wide Awake and Dreaming as their book of the month! I had the honor of attending their book club meeting last weekend....

On My Own, Together: Learning to Accept Help

Diagnosed with narcolepsy in my mid-twenties, the concept of a “care giver” scared me deeply. I didn’t want to be a burden on anyone. Like most twenty-somethings, independence was very important to...

School Accommodations with Narcolepsy Video

My latest video describes accommodations for succeeding in school with narcolepsy. Watch below or on YouTube: Watch this video on YouTube. Check back soon for more videos. Thank you to Alex Withrow...

Love to Boston

“The heart of the world beats under the three hills of Boston.” -Oliver Wendell Holmes, Sr. The tragic explosions at the Boston Marathon finish line yesterday hit close to home. While I was far...

Narcolepsy selected for FDA Patient Focused Drug Development Initiative (PFDDI)

I’m thrilled to announce that NARCOLEPSY has been selected for FDA’s Patient-focused Drug Development Initiative (PFDDI). Narcolepsy has been selected as one of the initial 12 disease areas for...

How Awake Are You? Game Measures Sleepiness

Recently, I discovered Harvard’s Healthy Sleep website featuring the “How Awake Are You?” interactive game. In 5 minutes, it analyzes your wakefulness. Th game is an online adaptation of...

Attending the World’s Largest Electonic Music Festival with Narcolepsy

My boyfriend, Alex recently surprised me with a trip to Ultra Music Festival in Miami, FL – the world’s largest electronic concert. As a music lover, I was thrilled. As a person with narcolepsy, I...

Narcolepsy Isn’t Like the Movies: 16 Secret Signs of Daytime Sleepiness

We all know the punch line of the narcolepsy joke – person falls asleep while standing or in the middle of the conversation. My daytime sleepiness doesn’t look like this. On the surface, it doesn’t...

REM Runner’s Top 9 Inspiring Female Health Advocates Part III

In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams. These women are trailblazers – leading the way for other women to optimize their...

Dating with Narcolepsy: We’re Better In Bed

A mother of a 9-year-old girl with narcolepsy and cataplexy recently thanked me for my book and narcolepsy leadership, saying, “You give me hope that my little girl can grow up and have a good...

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REM Runner’s Top 9 Inspiring Female Health Advocates Part II – The Sleep Team

In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams. These women are trailblazers – leading the way for other women to optimize their...

REM Runner’s Top 9 Inspiring Female Health Advocates Part I

In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams. These women are trailblazers – leading the way for other women to optimize their...

Narcolepsy Videos Featured on EmpowHER

Recently, I shared my story of narcolepsy with renowned women’s health advocate and EmpowHER founder, Michelle King Robson. EmpowHER is an award-winning social health company for women, providing...

Dr. Mignot Discusses Current State of Narcolepsy Research with NIH’s Dr. Twery

Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video...

Ireland’s First Suddenly Sleepy Saturday Narcolepsy Awareness Event: Guest Post by Elaine Butler Armstrong

REM Runner’s Note: Narcolepsy advocate and my dear friend, Elaine Butler Armstrong recently organized Ireland’s First Suddenly Sleepy Saturday Narcolepsy Event! I invited Elaine to share this...

First Annual Narcolepsy Bed Race Re-cap: Guest Blog Post by Dr. Mark Patterson

REM Runner’s Note: Following upon a previous post, my friend and fellow narcolepsy advocate, Dr. Mark Patterson reports back after the first annual Narcolepsy Bed Race! Dr. Mark Patterson’s Guest...

It Only Takes One: The Friendship that Gave Me the Courage to Start Sleep Walk

Three years ago, I started the first SLEEP WALK unsure if anyone would show up. My good friend Gail said she would join me and I believed her. “As long as I’m not alone,” I told myself. Gail was...

Celebrating Narcolepsy Awareness Day 2013 with Sleep Walk Dallas

On Narcolepsy Awareness Day, Saturday March 9, 2013, I hosted the first Sleep Walk in Dallas, TX! I was traveling to Dallas for the Southern Sleep Society Meeting and planned this event last...